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 Vanessa (Joshua & Steff's mom)'s Profile |
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| Age: | 35 years old |
| Sex: | Female |
| Location: | Texas |
| Country: |  United States |
| Height: | 5' 5" |
| BodyType: | Average |
| Zodiac: |  Aquarius (Jan 20 - Feb 18) |
| Last Login: | Jun 5, 2008 (559 days back) |
| I am Here For Friends and Networking. | |
About Me |
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| VANESSA WOOTEN I was born in January 1973, grew up in a humble, Christian home. I lived in the country with my mom, dad, my grandma (dad's mother) and my younger brother. Our home was on 4 acres in the country. We raised chickens, rabbits and cats. We tended a large vegetable garden with many fruit & pecan trees. My dad, a self-employed CPA, had his office next door to our home. We worshiped at a Baptist church where my parents taught children’s Sunday school classes, and my mom worked as church financial secretary. I was SAVED and baptized when I was 9 years old. I did well in school, participating in the Zenith program and Advanced Honors classes. I was editor of my school yearbook my senior year. And, I earned a full scholarship to a junior college, where I studied journalism and aspired to be a talk show hostess. In an accident on the way to class, I burned my right arm. I dropped out of college a while. I took a few classes later and interned at our local CBS affiliate, KOSA TV where I went on to become producer then assignment editor. 9 years later, I felt God was calling me for a change, and I accepted an offer at the Permian Basin Rehabilitation Center to work in medical records and patient intake. I became a mother and wife in 1994 when I married a widower. James lost his first wife in a car accident just before their daughter, Steffany turned a year old. My family and I knew his wife when she was a girl in our church. We all felt an instant connection. Our son, Joshua came along in 1996. In 2004 my husband’s employer transferred him about a 5 hour drive away from our families and hometown. We sold our house and moved away from our familiar settings. I took the summer to settle our new home. By the time I started to look for a new job in the new city, a 24-hour local news station disbanded, flooding the market with news professionals. So, I found work with a small business specializing in Flexible Spending Accounts (Cafeteria Plans). A few months after the move, our son, Joshua - who had been healthy all his life - suddenly collapsed and went into respiratory arrest. We nearly lost him. It took months for doctors to find the cause of his collapse. He has a very rare & serious disorder that causes his breathing to be too shallow, stops his body from making growth hormones or properly regulating his body temperature or hydration. It has left him with a trach tube in his neck so a ventilator can breathe for him. He also needs daily growth hormone injections and other medications. What's more, doctors say there is no known cure for this disorder. With Joshua's need for all of this new specialized medical care, and nobody else to provide most of it, I am no longer able to hold a regular full-time job. I now change Josh's trachs, monitor his machines and vital signs, give him shots and medicines, train and manage his nurses, order his medical supplies and handle the mountains of paperwork associated with his medical care. Of course, I also care for the rest of my family, doing the cooking, cleaning, paying the bills, etc. On Wednesday nights, I help teach an AWANA class. And, I take care of the elderly parents of a fellow church member in their home weekdays (Josh comes with me when he's not in school). Because Joshua's disorder is so rare (only 25 cases known in the world) there was a big write-up in the San Antonio Express News. That article even led to an hour-long documentary being made about Joshua and the onset of this disorder. It was shown on Discovery Channel and Discovery Health Channel. Life or Death Battling to Breathe Sun, Mar 2nd 4PM (Central) Eight year-old Joshua Wooten is a real mystery. When his mom takes him to the ER after finding him collapsed on the floor, doctors discover his blood oxygen level is just half of what it should be. And yet he shows no obvious signs of disease. Want To See It? Watch the entire hour-long Discovery Channel documentary about Joshua below! click the arrow on the big screen on the player below. The segments automatically load one at a time. below: September 19, 1996 Joshua is born healthy. Josh Wooten birth announcement .. He grows into a happy boy who loves his family, pets and sports. March 3, 2005 Joshua is 8-and-a-half years-old. He spikes a fever and collapses. I take him to the Texas Med Clinic where doctors find his oxygen level is down to 50 percent (it should be 100 percent) Ambulance rushes Joshua to hospital. He is admitted to Pediatric ICU. March 4, 2005 early morning hours Josh goes into respiratory arrest. He has to be revived 5 times! March 17, 2005 After 2 weeks in ICU, Josh released from hospital He goes back to school finishes out the school year and enjoys the summer Aug 30-Oct 3, 2005 Josh extra sleepy again, his blood oxygen levels falling again. He is admitted to Methodist Children's Hospital A doctor in Chicago helps San Antonio doctors make the diagnosis of Late-Onset Central Hypoventilation Syndrome with Hypothalamic Dysfunction. Sept 16, 2005 Josh gets a tracheostomy (tube in his neck) Sept 19, 2005 Josh 9th Birthday sadly, he's still in the hospital and in isolation because he developed MRSA infection. Oct 2005 Josh home from hospital but he has to hook to ventilator when he sleeps. We wait to hear from Rush Hospital Josh needs to go to Chicago to see Dr. Weese-Mayer She is the doctor who helped make diagnosis. We hope she will agree Josh is a good candidate for a diaphragmatic pacemaker so he can get rid of trach tube and ventilator. Jan 29, 2006 Josh sings "I Can Only Imagine" for our church not a dry eye in the place Feb 2006 Joshua goes back to school after the school district hires a one-on-one nurse for him. (Remember, he has not been able to go to school since the end of August, when he was hospitalized for 6 weeks) May 2006 A dear friend helped make this video, Meet Josh Wooten July 2006 Make A Wish sent us to Orlando THANK YOU MAKE-A-WISH OF CENTRAL TEXAS and ALL THE SPONSORS!!! WE HAD A GREAT TIME!!!! July 30, 2006 San Antonio Express News prints story about Joshua in their Life Section Sept 2006 2 not-for-profit websites for chronically ill children feature Joshua on their sites. To see his pages click on their logos below: Sept 6-13, 2006 Josh hospitalized due to high sodium level in blood Sept 19, 2006 Josh's 10th Birthday (and he’s NOT in the hospital) Sept 21, 2006 Josh sworn in as an honorary Cibolo Police Officer Sept 24-29, 2006 to see specialist at Rush Hospital Chicago skyline from hospital's apartment building Josh studied day & night a test shows Josh could stop breathing altogether if the power fails & machine turns off Dr. Weese-Mayer says Josh needs to be on the ventilator and he is NOT a candidate for the diaphragmatic pacemaker - at least not now. He has to keep his trach probably forever. Very disheartening news! And he needs nursing care 24 hours a day. Oct 2006 Trip to Odessa Nov 2006 TV Producer contacts me about doing for Discovery Channel Nov 2006 Josh starts taking growth hormone shots 6 nights a week! Feb 2007 Josh approved for Medicaid waiver program but had to spend a night in a nursing home first Feb 2007 TV Crew comes from London, England to shoot interviews for Discovery Channel Feb 2007 Josh's Baptism March 2007 Josh rides along with Cibolo police March 2007 An article I wrote about Joshua published by online Christian magazine. Read it by clicking here: April 2007 Josh has a trach and ventilator but he is still happy especially with his dogs June 2007 Family Vacation to Rockport/Port Aransas, TX July 2007 Watching Cowboys Training Camp at Alamodome, San Antonio, TX Aug 20 2007 Josh Pilot for a Day Sept 17, 2007 Josh got to start 4th Grade after school district hires him a new nurse (another nurse quit the 1st day of school this year) Sept 2007 Josh's 11th Birthday Party Oct 2007 Josh gets new basketball goal the good Joshua with his class on a field trip to the symphony in Seguin. Then lunch in a park. His special needs nurse at school took pictures for me since I couldn't go on this trip (I stayed with elderly couple that day). the bad Joshua's sodium level in his blood was very high (meaning he is very dehydrated) Friday when he went to the pulmonologist (lung doctor). This can be quite dangerous, so he has to drink an extra lot of fluids - even though he doesn't feel like he needs them - and then go back Friday of next week for more bloodwork. premiered Thursday, November 8, 2007 on Dec 2007 Christmas Happenings Read about ROHHAD in this article by specialist, Dr. Debra Weese-Mayer click below: LINK Article About ROHHAD |
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My Interests |
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Live Pictures from our Area San Antonio's Riverwalk The Alamo Sea World, San Antonio Overlooking San Antonio send a voice message here: |
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I'd like to meet: |
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Television:We can better our world.. |
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Books: |
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Heroes: |
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My Background and Lifestyle |
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| MaritalStatus: | Married |
| Ethnicity: | White / Caucasian |
| SexualOrientation: | Straight |
| Hometown: | Odessa, Texas |
| Religion: | Christian - other |
| Children: | Proud parent |
| Education: | Some college |
My Pictures |
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My Blog |
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gas prices, trips, band & cowboy hats |
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gas prices How is the price of gas affecting your wallet? It now costs over $70 to fill our van up with gas just once.... Posted by Vanessa (Joshua & Steff's mom) on Fri, 30 May 2008 09:50:00 PST |
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Sharing Mothers Day |
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| How was your Mother's Day? Mine started out like this.....I got up to the sound of my phone beeping. Every single beep was an alarm telling me there was a new message on MySpace. I thought to mysel... Posted by Vanessa (Joshua & Steff's mom) on Mon, 12 May 2008 08:20:00 PST |
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Counting my blessings&. |
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| It is so easy to get discouraged and find things to complain about. It's no fun to have to lug Josh's ventilator around all the time, having to fight with him- when he becomes symptomatic- urging him... Posted by Vanessa (Joshua & Steff's mom) on Fri, 09 May 2008 11:06:00 PST |
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Check out this video: We can better our world |
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| Check out this video: We can better our world
..Add to My Profile | More VideosI saw the beginning of this episode earlier today and thought it was something we all needed to hear and to t... Posted by Vanessa (Joshua & Steff's mom) on Thu, 24 Apr 2008 07:10:00 PST |
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Poteet Strawberry Festival |
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| POTEET STRAWBERRY FESTIVAL We'd been seeing the ads on TV for the last several days...a KENS 5 TV news anchor listing some of the great foods they'd have: strawberry shortcake, strawberry ice cream, c... Posted by Vanessa (Joshua & Steff's mom) on Sat, 12 Apr 2008 07:14:00 PST |
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Let the Bidding Begin |
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| As most of you know, we have needed a vehicle with a lift to pick up Joshua’s ventilator cart and load/unload it because it is very heavy. His schoolbus has a wheelchair lift - but our van did n... Posted by Vanessa (Joshua & Steff's mom) on Tue, 08 Apr 2008 06:19:00 PST |
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Alamo and Snow |
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| Today was field trip day for Josh and his fellow 4th graders (I was a chaparone) We went to the Alamo then to the IMAX theater to watch the movie, "The Alamo" below is a clip from a different ... Posted by Vanessa (Joshua & Steff's mom) on Fri, 14 Mar 2008 08:02:00 PST |
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Josh Cognitive Testing and VAN update |
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| A report from Joshua’s latest school ARD (Admittance, Review and Dismissal) meeting shows Joshua lost a lot of ground in his cognitive / IQ levels over the past 3 years.. information about that ... Posted by Vanessa (Joshua & Steff's mom) on Thu, 13 Mar 2008 08:53:00 PST |
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Found a Van! |
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| We have been looking for a van we can afford with donation money we've received. (We've been told to expect about $6,000 more very soon - which would bring us to about $10,000).
Well, we f... Posted by Vanessa (Joshua & Steff's mom) on Sun, 09 Mar 2008 08:48:00 PST |
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Josh Testing, Steff Driving |
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| Josh School TAKS Test & Star Student Joshua is taking the Texas Assessment of Knowledge and Skills (TAKS--) test today... which is a really important test for him to pass. The... Posted by Vanessa (Joshua & Steff's mom) on Wed, 05 Mar 2008 12:47:00 PST |
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My Friends |
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Meemaw, James, I want to be ur fav hello and ur hardest goodbye, Pray for Josh!!, Amanda, ThE MaCk DaDdY, Josh, Amy, Hot Mama.. One Sassy Pickle, MeL, Princess Bishop, Andy, Sonya, Ben, Joan, Michelle, Cassie, Travis, Bride to Be, Cammie Walker, ~TRiSHA~, Trent, A.R.I.C.A ♥, Nicole Day[rebel], Donny, Terry, Hero, Shawn, Mindy, Angel, christy, :0) Cowgirl :0), chelsea [ cant wipe this smile off ], DJ Jake, Sandra, kenny, ~Barely Legal Semper Fi~, Wanting a Change PLEASE!!!, Kevin & Natasha, Genifer, Caffey ♥ Team Trinity ♥, PK's Dyxeeland Delight, gary, Misty Bolton, Joyce(r.i.p) our angels Jordan & Tyler, Sold Out For God, HEATHER MICHELLE, Kathryn, Brooke, ♥Vecy♥, Elvita, ♥((-Charlotte-))♥, Tricky Nikki, Tweety, TmbraCowgrl (Tobi), Vivian, ♥ I Will Pray For U ♥, The kid with SENIORITIS!, SuperDeb!, ♥Pammycakes and Dennybaby♥, Patti *carpe diem*, lena, Jenny, Krystal -MOMOFAUTISM, Myra, ~♥Brandy♥~, LexxyOD, R~e~j~e~a~n~a, Amanda ©, Sooze ~B.A.D. Canadian~, Cari, Tami & Jason
Vanessa (Joshua & Steff's mom) has 643 friends (72 shown). Click here to add Vanessa (Joshua & Steff's mom) as a friend. |
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Tags |
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Vanessa (Joshua & Steff's mom)'s profile has been tagged with the following keywords. Click a tag to search for profiles with the same tags. talk show hostess, local news station, permian basin, son joshua, odessa texas, school yearbook, mom dad, pecan trees, cbs affiliate, patient intake, assignment editor, mother and wife, financial secretary, steff, vegetable garden, widower, first wife, rehabilitation center, right arm, senior year |
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