This is our cache of the profile last indexed on Tuesday, May 06, 2008. Visit MySpace for updated profile. MySpaceProfiles.org is a search engine that indexes publicly available profile information from MySpace for convenient searching and display. If you are the author of this profile and do not wish to display it here please click here.
 Scott G. LaLonde Handi-Capable Power 16k+'s Profile |
|
| Age: | 43 years old |
| Sex: | Male |
| Location: | Tavernier, Florida |
| Country: |  United States |
| Height: | 6' 1" |
| BodyType: | Average |
| Zodiac: |  Aquarius (Jan 20 - Feb 18) |
| Last Login: | May 6, 2008 (589 days back) |
| I am Here For Dating, Serious Relationships, Friends and Networking. | |
About Me |
|
| .. Free Myspace Layouts by MyspaceLayoutSpy.com Thunderbirds Myspace Layouts in Military Myspace Layouts Myspace Comments | Myspace Graphics | Myspace Surveys __________________________________________________________Ho w I met Governor Jeb Bush at family Café 2002 a mental and physical disability conference.I finally opened my big mouth and said I am from Monroe County and their idea of health care is to have me spent 18 to 20 hours a day in bed and the only crime I committed was being born disabled. Scott G. LaLonde Duchenne Muscular Dystrophy Website:http://sglalonde.tripod.com/ E-mail scottklfl@aol.com MySpace http://www.myspace.com/scottklflaolcom My MySpace URL: groups.myspace.com/Disabledcivilrights______________________ ______________________________________I met Governor Jeb Bush when I went to family Café in Orlando which is for mentally and physically disabled people to a voice our opinion to Governor Jeb Bush about disability issues. And he gave a speech about a Med Waiver direct pay program that would give me 97% of what Medicare is billed. I thought well this would be a great program for me to be on. They started asking questions from the audience.I finally opened my big mouth and said I am from Monroe County and their idea of health care is to have me spent 18 to 20 hours a day in bed and the only crime I committed was being born disabled. Governor Jeb Bush said they didn't have anymore time for any more questions he has other obligations to go to with his wife. I said no I would not be silent I have the floor now like a voice in the wilderness someone finally brought me a microphone. I made the same statement again but this time with a microphone I would not give up the floor I played a Mr. Smith goes to Washington have you ever watched the old black-and-white movie rule is as long as you keep talking they cannot remove you from the floor it is proper form for the house of representatives. Finally after seeing I would not be quiet Governor Jeb Bush came off the podium and came out into the audience to give me his personal e-mail address at the time I was a member of Center for Independent Living of the Keys and so was my father. I had all this pent-up anger and finally I had my chance to voice my opinion. And I did unfortunately there was no camera to be found I guess disabled people are too much of a small minority that it was not newsworthy enough. After this I got the advocacy bug bite.So I started a letter writing campaign and when I receive letters from representatives I sent back my responses I kept these letters and responses and even some schoolchildren's wrote some notes about how unfair this treatment was that the agencies would come at 8 clock in the morning and putting me back in bed at five o'clock at night. Berrnice first grade class imagine if someone got caught putting their dog in a pen for 18 to 20 hours a day somebody would call animal abuse and here I am a human being treated this way.I even got a picture of me and my father talking with Governor Jeb Bush and made a documentation packet with that picture of me talking to Jeb Bush about this issue and put all the papers I had collected and sent them directly to the White House of the United States signature return receipt. I received the receipt but have not received a letter discussing this issue even with the picture of his brother Governor Jeb Bush on the cover page. To this day I have never received anything back from the White House.If I’m being treated this way how many others are being treated this way who don't know what they are legally entitled to in this great nation of ours and not receiving proper care. Some states are better than others Florida is one of the worst. There is a George W. Bush presidential Executive Order13217 (http://www.whitehouse.gov/news/releases/2001/06/20010619.ht ml) of June 18, 2001 stating that disabled people should have the choice of living where they want to instead of having on choice and being put into a nursing home which is exactly what they wanted to do with me. Called the Supreme Court Olmstead Decision. (http://www.accessiblesociety.org/topics/ada/olmsteadovervie w.htm) Which is a great milestone for the disabled minority of this great country of ours!The following letter was sent on January 14, 2000, by the Health Care Financing Administration to State Medicaid Directors urging Medicaid Directors to work to implement the Olmstead Decision. (http://www.advocacycenter.org/news/newsletter-jan01/jan2001 d.htm )My lawyer Gordon (GordonS@advocacycenter.org) from The Advocacy Center for Persons with Disabilities,Inc. Florida's Protection and Advocacy Program for Persons with Disabilities.( http://www.advocacycenter.org/index.html) We appeared before Florida Department of children and families hearing officer from the state of Florida on three occasions on the final occasion after eight years of being treated this way. They said that it was okay because I was finally receiving services that I was entitled to. Yes it is an entitlement According to the Supreme Court Olmstead decision! I stated do you think you are the Catholic Church you’re just going to have the whole thing annulled like it never happened. I stated I lived under these conditions for all those years and I will not forget. So they brush the whole thing underneath the carpet like it never happened. Gordon my lawyer told me I never really had my fair day in court.I even wrote to 20/20,60 minutes, Oprah Winfrey show, Channel 6 and 7 news. But I never heard anything in response to my predicament!Is there any way the Miami Herald could do anything to help me with this situation I do not want to have another disabled person to live through what I have endured.Sincerely,Scott G.LaLonde |
|
My Interests |
|
| Volunteer at a elementary school as a Teacher Aid and Mentor. computers videogames Movies action, romance, comedy,watching Discovery Channel science-fiction, Star Trek, reading popular science having fun and joking around bike rids walks like dogs and cats | |
Music:1.Weapons of Mass Persuasion2."Queen" We are the Champions "I've paid my dues time after time I've done my sentence but committed no crime." "I spent eight years 16 hours a day in bed just because I was born disabled!"3.George Thorogood & the Destroyers Bad to the Bone Favorite Songs |
|
Movies:HTML content to post goes here (e.g. text, images, objects, etc.)" / Share on MySpace! |
|
Television:Psych, Kyle XY |
|
Heroes:Professor Stephen W. Hawking Myspace Tom MySpaceIM Rocks |
|
My Background and Lifestyle |
|
| MaritalStatus: | Single |
| Ethnicity: | White / Caucasian |
| SexualOrientation: | Straight |
| Hometown: | Saginaw MI |
| Religion: | Christian - other |
| Smoker: | No |
| Drinker: | Yes |
| Children: | Undecided |
| Education: | Some college |
| Occupation: | For My Lord |
My Pictures |
|
                    |
|
My Blog |
|
All band on Myspace can you help a disabled brother out! |
|
| All band on Myspace can you help a disabled brother out! I have Myspace disabled civil rights group. My goal is to make everyone in this country aware of med waiver community-based program... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Apr 2008 12:27:00 PST |
|
Backers Muscular Dystrophy 6 months 10y live be for death signed done petition! |
|
| Please sign & forward Scott G. LaLonde Disable Life Liberty and Pursuit of Happiness petitiononlinehttp://www.petitiononline.com/Ord13217/petitio
n.htmlFor more information go to Website: http:/sgl... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Apr 2008 06:27:00 PST |
|
How dare a disabled stick up for his disabled civil rights! |
|
| ..>
Get the folks just went to McDonald's have my 15 year old niece drive my handicap equipped van with my father! Was told by the establishment manager I was not welcome to bring my service dog in ... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Sat, 16 Feb 2008 04:44:00 PST |
|
Wow, thanks for sharing your story with me. Ive been volunteering with MDA for 11 years now an |
|
| Wow, thanks for sharing your story with me. I've been volunteering with MDA for 11 years now and I work mostly with children affected by it. I do the summer camps and assist with pretty much any fundr... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 22 Jan 2008 10:43:00 PST |
|
RE: Disable Life Liberty and Pursuit of Happiness |
|
| Intersting, doesnt Fl have cash and carry already? I just got back from DC we went to the hearing for the house there with ADAPT. It was an interesting one. If they would pass the community choice act... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Thu, 17 Jan 2008 07:19:00 PST |
|
I just talked to a gentleman yesterday that has worked as a roofer his whole life and is now al |
|
| I just talked to a gentleman yesterday that has worked as a roofer his whole life and is now also disabled and is being treated poorly just like yourself. There are laws protecting us but the governme... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Jan 2008 01:18:00 PST |
|
Please put me in your top 40 friends list!!! |
|
| Please put me in your top 40 friends list so that more people can learn about the situation that some disabled people are having to endure I do not want any other disabled person to have to go through... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Jan 2008 01:08:00 PST |
|
Americans right to free speech |
|
| You have no right to judge me you do not know how I have to live. I can barely move my hands and on most hardly use my mouse. I drive my wheelchair with my head. For all intents and purposes I am a cl... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Jan 2008 12:45:00 PST |
|
I feel for our military brothers and sisters in Iraq |
|
| You guys are over there busting your asses protect our freedoms and the government is treating you as badly as they treat me believe you me I know what you're talking about! And the next thing most pe... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Jan 2008 12:11:00 PST |
|
My religious beliefs |
|
| Thank you for your prayers and concerns. I am also a Christian and believe this is what Jesus put me on this earth to do. To speak out on behalf of all disabled people. I'm doing the best I can and Je... Posted by Scott G. LaLonde Handi-Capable Power 16k+ on Tue, 01 Jan 2008 11:43:00 PST |
|
My Friends |
|
|
MDA, The League of Extraordinary My Spacers, Life Rolls On Foundation, ARTs COMMUNITY™, Handi-Capable, New Mobility Magazine, "Ride with Pride", Madonna Navy MOM, Leah, National Spinal Cord Injury Association (NSCIA), Professir X, Apparelyzed, KiSsMyANimE, tony, Otter...LTD )(, The GLBT Differently Abled Network, The Beast, Patrick, Nikki, Pittsburgh Steelwheelers, EAST COAST CRIPPLERS, Extreme Chairing, Amputee Organization of America, Limbs of Hope Foundation, Fallen Heroes, Impact Awards, Single Car Garage, 365 Riders MC, Greg Stewart & The Opposition, Queen of Heart, Freak AIRBRUSH, Adopt An Animal, spikey, The High Priestess, Wheelz of Fury, JESUS CHRIST IS REAL, April Marie ((ILYBFF ~ Renee)), JoAnn, MARIE "JERSEY GIRL", *~Jennifer~*, NARCO T, World of SMArty's, EEK & Friends™, INCASE U DIDNT KNOW MS.KEMA IS BACK& READY FOR 08., steve [wcar], DTAlpha, ♥Kelly♥, Andrew, firegirl, Come $hop With Me...S2I Productions™, Angel Moms against abuse, Gerry, Look out Jay...Heick's coming!, Monee: Senior Business Adviser, Monique Elizabeth, Gillian Anderson Fansite©, Phil Payne Music, S-KAYDA(SUPPORT THE TROOPS, END THE WAR) RIP D, HP LYRIKZ, R.I.P.T.Y.D.™, Bubbles, Mina, Hi-Rise Productions N.Y.C., Dennis, Cheryl, E.M.I.Y., christine, No Luck, Total Package, Pei Senn, BEHM ENTERPRISES, trish, Terry Dexter, ~EMS♥GIRL~, Turbosetman, :://MoniqueSan will be 20 MAY3RD BISHES WHOOOO \\:, Angel!!!!Waiting for April Nicole!!!!, Brittany, HOODLYM, Tabitha, R.I.P~Lashona Brue~....Always in my heart....., American Beauty, TONYA
Scott G. LaLonde Handi-Capable Power 16k+ has 16,317 friends (83 shown). Click here to add Scott G. LaLonde Handi-Capable Power 16k+ as a friend. |
|
Tags |
|
|
Scott G. LaLonde Handi-Capable Power 16k+'s profile has been tagged with the following keywords. Click a tag to search for profiles with the same tags. governor jeb bush, free myspace layouts, myspace surveys, jeb bush, tavernier florida, mr smith goes to washington, disability conference, myspace comments, voice in the wilderness, disability issues, physical disability, lalonde, e mail, big mouth, disabled people, thunderbirds, muscular dystrophy, monroe county, caucasian |
|
