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| Age: | 47 years old |
| Sex: | Female |
| Location: | Tampa Bay Region, Florida |
| Country: |  United States |
| Last Login: | Dec 6, 2009 (-7 days back) |
| I am Here For Friends and Networking. | |
About Me |
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Medication Switching... GET THE FACTS! The Epilepsy Foundation announced a new report of survey data obtained from more than 1000 consumers who report an increased risk of seizures and side effects when they have switched from one manufacturer’s formulation of an antiepileptic drug (AED) to another. The switch can be between different manufacturers’ versions of the same generic drug, from a generic to the brand-name drug, or from the brand-name drug to a generic. It can also be caused by a switch from one manufacturer’s formulation of its antiepileptic drug to a new formulation of the same drug. The Foundation’s just-released survey tells the stories that too many individuals have experienced, and supports other newly published studies documenting that switching can cause breakthrough seizures and severe, unexpected side effects. CLICK THE ABOVE BANNER TO READ MORE AND WATCH / LISTEN TO THE VIDEO ALSO INCLUDED! 2009 NATIONAL WALK FOR EPILEPSY Washington D.C. Tremendous Success! See Video Below: .. Find more photos like this on Epilepsy Foundation 3rd Annual National Epilepsy Walk is a tremendous opportunity for you to highlight the many ways that you EDUCATE your community about epilepsy, EMPOWER those living with the condition to better manage their care, and ENCOURAGE lawmakers and researchers to make positive strides towards the bright future of those living with epilepsy. In order to highlight the growing need for awareness about epilepsy, November has been designated as National Epilepsy Awareness Month. This gives the Epilepsy Foundation and others a special opportunity to inform the public about epilepsy and concerns within the epilepsy communities. Find out what's happening around the country. It is our continued endeavor to help dispel myths about epilepsy, teach proper seizure first aid and improve the quality of life for all individuals, families, and friends with epilepsy. Listen to Greg Grunberg and What he has to say about Epilepsy by clicking on the video above! TV Stars Rock Out to Support Epilepsy Foundation; New Album is "Hoggin' All the Covers" What started out as a love for music and simply having fun band from tvjamming with buddies has led epilepsy advocate and ‘National Walk for Epilepsy’ chair Greg Grunberg and his friends to an unusual place: packed venues playing rock and roll for charitable causes, including the Epilepsy Foundation! The Band From TV lineup includes a powerhouse of well-known and acclaimed actors including: Greg Grunberg (drums), a veteran of shows such as Alias and Felicity and currently starring in the NBC hit HEROES; Teri Hatcher (vocals) and James Denton (guitar), currently starring in the ABC hit DESPERATE HOUSEWIVES; Bob Guiney (vocals), who appeared on THE BACHELOR and is currently seen on TLC's DATE MY HOUSE; Bonnie Somerville (vocals); Jesse Spencer (violin) currently starring in the FOX hit HOUSE; and rounding out the band are accomplished musicians Chris Kelley, Barry Sarna, Jon Sarna, Chris Mostert and child-star turned bass player Brad Savage. CLICK ON THE BAND IMAGE ABOVE TO LEARN MORE! What causes epilepsy to develop in some people but not others? Why is it that an isolated seizure in one person can be just that — a one-time aberration — while in another person it triggers a worsening progression of symptoms? What’s going on in the brain during this measured march toward the brain state of over-activation that we call epilepsy? Read more by clicking on the banner below (will open a new window) - presented by the Epilepsy Foundation. What is Epilepsy? Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more seizures, they are considered to have epilepsy. A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain. One in 10 adults will have a seizure sometime during their life. Click on the Banner above to learn more! Managing Your Care Although there has yet to be a cure for epilepsy, we can strive to ensure that "not another moment is lost to seizures." People living with epilepsy can manage their seizures and improve how they are perceived, accepted and valued in society. Click on the above Banner to learn more! Dr. Alan Ettinger, Chief of the Division of EEG and Epilepsy at the North Shore-LIJ Comprehensive Epilepsy Centers, continues the Ask the Expert series by answering questions you have about medications and its side effects. Click on the Banner above to obtain more information The Epilepsy Foundation is a voluntary, charitable organization wholly dedicated to helping people with epilepsy, working to solve its problems, and supporting research to find a cure. Click on the No More Seizures Button above and listen and learn all part of the EPILEPSY FOUNDATION Fast Facts: * Epilepsy is one of the most common disorders of the nervous system. * It affects people of all ages, races, and ethnic backgrounds. * More than 3 million Americans of all ages are living with epilepsy. * Every year, 200,000 Americans will develop seizures and epilepsy for the first time. * It can develop at any time of life, especially in early childhood and old age. FIRST AID FOR SEIZURES First aid for epilepsy is basically very simple and is designed to protect the safety of the person until the seizure stops naturally by itself. If you see someone having a seizure, stay calm, and follow these rules: * Look for Medical Identification * Protect from nearby hazards * Loosen ties or shirt collars * Place folded jacket under head * Don't restrain * Don't put anything in the mouth * Don't try to hold the tongue, it cannot be swallowed * Don't try to give liquids during or just after seizure * Turn on side to keep airway clear * Reassure when consciousness returns * Don't use artificial respiration unless breathing is absent after muscle jerks subside, or unless under water has been inhaled * If seizure lasts longer than 5 minutes or another starts soon after the first, call 911 or an ambulance To help someone you know who is living with Epilepsy or Seizure Disorders - Contact the Epilepsy Resource Center: 1-800-EFA-1000 (USA ONLY). OR CLICK ON THE HEADQUARTERS LOGO ABOVE Or Visit Your Available MySpace Epilepsy Foundation State By Clicking On Logo Below: Honolulu, HI January 25, 2009 808-528-3058 United States Info: The Center for Disease Control and Prevention Information on EPILEPSY provides news, research and information. Disability Programs Disability Evaluation Under Social Security (Blue Book) General Information United States Office For Civil Rights A community of people living with Epilepsy. It can be tough to cope with Epilepsy. With this site, we hope to provide a place where anyone affected by Epilepsy can meet, discuss epilepsy treatments and support one another. There are many sections to this web site including a forum section for people for discussions, as well as resources and information. Lennox-Gastaut Syndrome aka (LGS), is a rare and difficult-to-treat form of childhood-onset epilepsy that most often appears between the second and sixth year of life, and is characterized by frequent seizures and different seizure types; it is often accompanied by mental retardation and behavior problems. Click on LGS Banner Above To Learn More About LGS! Epilepsy - is it what you think? Visit Epilepsy Ontario, Canada Epilepsy Ontario Suite 308 1 Promenade Circle Thornhill, Ontario Canada L4J 4P8 905-764-5099 416-229-2291 800-463-1119 (toll-free, Ontario only) 905-764-1231 fax email: info@epilepsyontario.org Epilepsy Action is the largest member-led epilepsy organization in Britain, acting as the voice for the United Kingdom's estimated 456,000 people with epilepsy, as well as their friends, families, careers, health professionals and the many other people on whose lives the condition has an impact. There is a lot to learn about epilepsy and seizures. It doesn't matter whether you have just been diagnosed or had it for twenty years, greater knowledge can be more empowering and lead to better management and a better life. CHECK IT OUT: Epilepsy Action publications contain useful information about epilepsy, seizure disorders and our essential work. Epilepsy 360° Our new quarterly magazine for people with epilepsy and their families, plus healthcare professionals AUSTRALIA ONLY: Ask an expert any questions you have about epilepsy or seizures Call 1300 37 45 37 or email epilepsy@epilepsy.org.au Eyal Israel Epilepsy Association ISRAEL ONLY: NOTE: Text in Hebrew, Arabic, and English The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy. We are working for the nearly one million people in the US living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services. GO. FIGHT. WIN the war on Parkinson’s disease. Join the team and play your part. Team Fox offers tools, support and inspiration to people in the community who are looking for creative ways to raise funds and awareness for Parkinson’s research. As a Team Fox member, your fundraising efforts will support the valuable work of The Michael J. Fox Foundation. What is Alzheimer's disease (AD)? Dementia is a brain disorder that seriously affects a person’s ability to carry out daily activities. The most common form of dementia among older people is Alzheimer’s disease (AD), which initially involves the parts of the brain that control thought, memory, and language. Although scientists are learning more every day, right now they still do not know what causes AD, and there is no cure. ANGELMAN SYNDROME Angelman Syndrome (AS) has confused the medical community and parents of Angelman children for hundreds of years. Initially presumed to be rare, it is now believed thousands of Angelman Syndrome cases have gone undiagnosed or misdiagnosed as cerebral palsy, autism or other childhood disorders. Autism is a whole-body disorder, and there are many treatments available - some as fundamental as changing diets and adding supplements -- that can bring substantial improvement and sometimes lead to recovery. If you have a child with autism, please contact the organizations below to find out more about autism, and how you can maximize the improvement and recovery potential of your child. FAST FACTS ABOUT TRAUMATIC BRAIN INJURY: A traumatic brain injury (TBI) is defined as a blow or jolt to the head or a penetrating head injury that disrupts the function of the brain. Not all blows or jolts to the head result in a TBI. The severity of such an injury may range from "mild," i.e., a brief change in mental status or consciousness to "severe," i.e., an extended period of unconsciousness or amnesia after the injury. A TBI can result in short or long-term problems with independent function. DRIVING WHILE INTOXICATED OR IMPAIRED, WHETHER BY ALCOHOL OR OTHER DRUGS, IS ONE OF THE GREATEST HEALTH AND SAFETY PROBLEMS IN AMERICA. IT IS BY FAR ONE OF THE LARGEST SINGLE CRIMINAL CAUSES OF ACCIDENTS AND DEATHS THROUGH OUT THE COUNTRY. THE SAD THING IS IT IS THE MOST PREVENTABLE SOCIAL PROBLEMS WE HAVE. EVERY 15 MINUTES SOMEONE WILL DIE OR BE HURT IN AN ALCOHOL OR DRUG RELATED ACCIDENT. Since its founding in 1950, the Muscular Dystrophy Association has become one of the nation’s largest and best-known voluntary health agencies. MDA provides comprehensive medical services to tens of thousands of people with neuromuscular diseases at some 225 hospital-affiliated clinics across the country. The Association’s worldwide research program, which funds some 400 individual scientific investigations annually, represents the largest single effort to advance knowledge of neuromuscular diseases and to find cures and treatments for them. Our name changed from Hallervorden-Spatz Syndrome Association to NBIA Disorders Association. All historical references to HSSA and HSS were left as is. NBIA Disorders Association 2082 Monaco Ct. El Cajon, CA 92019-4235 United States of America Phone: (619) 588-2315 FAX: (619) 588-4093 E-mail: info@NBIAdisorders.org The American Heart Association's legislative advocacy efforts move us closer to our goal of reducing heart disease, stroke and risk by 25 percent by the year 2010. Learn about key policy issues, including research and prevention funding, access to quality health care, stroke, tobacco control, obesity, emergency cardiovascular care, physical activity and nonprofit issues. Stroke and T.I.A. (Transient Ischemic Attack) can also be BRAIN Attack and do tremendous and critical damages to a person who had suffered an attack, leaving them paralyzed, suffering from seizures, and much more. Thousands of people suffer from Stroke or T.I.A which is just as dangerous as a heart attack. The ASAA is a non-profit organization dedicated to reducing injury, disability, and death from sleep |
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My Background and Lifestyle |
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| MaritalStatus: | Divorced |
My Blog |
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EPILEPSY FOUNDATION REPORTS Think Twice Before Switching Medications |
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| Medication Switching...
GET THE FACTS!
The Epilepsy Foundation announced a new report of survey
data obtained from more than 1000 consumers who report
an increased risk of seizures and s... Posted by on Fri, 22 May 2009 12:38:00 GMT |
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Epilepsy Foundation of America Members are ... |
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| Visit Epilepsy Foundation Posted by on Wed, 25 Mar 2009 02:35:00 GMT |
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Experts Propose Minimum Standards of Care for Epilepsy |
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| Experts Propose Minimum Standards of Care for Epilepsy Goal is to Improve Consistency and Quality of Care Across All Treatment Settings Leading epilepsy specialists met recently at the American Epile... Posted by on Tue, 06 Jan 2009 00:24:00 GMT |
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New album Hoggin All the Covers - Check it out at Epilepsy Foundation! |
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| TV Stars Rock Out to Support Epilepsy Foundation; New Album is ...."Hoggin' All the Covers" What started out as a love for music and simply having fun jamming with buddies has led epilepsy advocate an... Posted by on Sun, 23 Nov 2008 05:23:00 GMT |
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Epilepsy Awareness Month - Make your voice heard! Epilepsy Foundation |
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| Show Your Commitment. Sign the Petition! The Epilepsy Foundation is leading the fight to increase funding for research and programs, stop discrimination and improve access to care.In 2009... Posted by on Thu, 06 Nov 2008 19:08:00 GMT |
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November is Epilepsy Awareness Month CHECK IT OUT NOW! |
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| NOVEMBER IS...National Epilepsy Awareness MonthEducate. Empower. Encourage.National Epilepsy Awareness Month (NEAM) is a tremendous opportunity for you to highlight the many ways that you EDUCATE your... Posted by on Sun, 02 Nov 2008 14:56:00 GMT |
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CDC Releases New Data on Epilepsy |
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| CDC Releases New Data on Epilepsy from Multiple States A multi-state study by the Centers for Disease Control and Prevention has found that about one out of 100 adults have active epilepsy, and more t... Posted by on Mon, 29 Sep 2008 13:57:00 GMT |
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Shedding Light on Photosensitive Epilepsy by Epilepsy Foundation |
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| Shedding Light on Photosensitivity, One of Epilepsy's Most Complex Conditions By Giuseppe Erba, M.D. Certain individuals are born with special sensitivity to flashing lights or contrasting visual ... Posted by on Wed, 09 Jul 2008 20:18:00 GMT |
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Learn About the Friends and Family from the Epilepsy Foundation |
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| Friends and Family Campaign The Friends and Family Campaign is a volunteer fundraising program providing existing supporters, like you, with an easy opportunity to raise additional funds for epilepsy ... Posted by on Thu, 08 May 2008 15:06:00 GMT |
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's profile has been tagged with the following keywords. Click a tag to search for profiles with the same tags. epilepsy awareness month, unexpected side effects, living with epilepsy, national epilepsy awareness month, tampa bay region, epilepsy foundation, antiepileptic drug, generic drug, epilepsy, individuals families, bright future, seizures, strides, survey data, seizure, lawmakers, endeavor, brand name, first aid |
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