Focus on a Cure for Parkinsons's Profile |
|
| Age: | 43 years old |
| Sex: | Male |
| Location: | OSWEGO, Illinois |
| Country: | |
| Zodiac: | |
| Last Login: | May 24, 2008 (89 days back) |
| I am Here For Friends and Networking. | |
About Me |
|
Click for the latest Parkinson's news from GoogleClick here to Join our E-mailing list According to the Parkinson's Disease Association
Our Mission:To inspire community involvement and raise awareness for Parkinson’s Disease, that will fund research to ultimately find a cure.Click here to Join our E-mailing list Our story: In late 2004 life was good, I had just finished my Bachelors degree after a 20 year hiatus and I was happily married. I thought I had finally made it, I was going to finally live up to my potential that everyone said I was not doing. It was just then when I was riding the highest wave of my life I was blind sided with the news I had Young Onset Parkinson’s disease (YOPD). It was like someone was dangling that carrot of success in front of me on the edge of a cliff and instead of giving me the carrot they pushed me off the cliff. I thought this cannot be happening, every time I get close to success it gets pulled out of my reach. It was this experience that has changed my view on just what success is. My best friend, who also is my beautiful wife Ann Marie of almost nine years, decided that she was not going to let me wallow in self pity. She began to research this strange new thing in our life called YOPD and educate herself on what was to come and how to deal with it. During her search she came across The Michael J. Fox Foundation site (MJFF); which has a tremendous amount of information for the newly diagnosed as well as general information about current treatments. I am and have always been a fan of Mr. Fox from Family Ties to all his movies but I never thought we would have something in common and never thought it would be YOPD. Ann found on his site a new program they were getting ready to launch later in 2005 called Team Fox for Parkinson’s Research. This was to be a grassroots community based fundraising arm of the MJFF giving anybody the opportunity and tools to organize or host a fundraising event to benefit Parkinson’s research as this is currently no cure. Ann joined the soon to be Team Fox as “Team Glowienke” but did not tell me of it as this time. I was still busy being mad at the world because I thought YOPD was going to steal my life, boy was I wrong. Ann began planning a walk-a-thon as her first event with Team Fox and finally let me in on the secret. I was overwhelmed that she had done all this and was not sure if it would work. As she was planning the event we started to work together of a name and finally came up with the idea of Focus on a Cure because no matter what we do we want to stay focused on our ultimate goal of funding and finding a cure. To date Focus on a Cure has raised over $11,000 for Team Fox and we hope to keep pushing that number up as the year goes on with our walk event and other things currently being planned. Because of the efforts of my wife The Focus on a Cure Foundation for Parkinson’s is no a official no-profit company. We have grown our network of friends not only here on myspace but nationally and internationally within the Parkinson’s community. This is where my new definition of success comes in. I used to think I needed to make a certain amount of money to be considered a success and have the finer things in life to be viewed as successful. I now know that being a success is to be able o look at your life and be satisfied with who you are not what you have in the bank. I have been blessed in my life with many things, a loving wife, a great family and great friends: but my greatest blessing is the burden of Parkinson’s because it has allowed me to become involved in something bigger than me and given me the ability to be a better person than I thought was possible. Success to me is not so much impressing others with what I have but impressing the guy that looks back at me in the mirror every morning with what I give; it is because of Ann and her love and support I am able to be the person I am today.Thanks for reading our story and being part of Focusing on a Cure for Parkinson’s disease. Together we can make this happen!!! "Facts do not cease to exist because they are ignored." |
|
My Interests |
|
To follow is a passage from the Book Quiet Strength by Tony Dungy Head Coach of the Indianapolis Colts. When I read this I was so taken by the message of these few paragraphs that it confirmed for me why we (ann and & I) were blessed with the burden of Parkinson's disease. Ann always tells me that everything happens for a reason and I believe that more and more each day. Some people look to God and say "Why me" I say "Why not me". I believe that I have been given a gift, in that I have the ability to use my medical condition to reach out to people and utilize my experiences to demonstrate how to live with Parkinson's and not to suffer from it. Thank you to all who have read and commented thus far the support is what keeps us moving forward. Our 2007 CafePress/Focus on a cure design winner Design created and submitted by Marjorie J. Toro http://www.myspace.com/mjtoro Please stop by her site to see other incredible original works of art. This design is now available in our CafePress store! .. .. |
|
I'd like to meet:Michael J. FoxWe met 4-27-07 what a night to remember Muhammad Ali |
|
Music:"After silence, that which comes nearest to expressing the inexpressible is music." |
|
Movies:Shaken: Journey into the Mind of a Parkinson's Patient |
|
Television:.. |
|
Books:"No Excuses, No Explanations"Tony Dungy |
|
Heroes:These are people who either live with PD every day or are champions of the cause to Focus on a Cure. In memory of Kaz's dad Bob; who lost his battle with Parkinson's and Cancer 4-18-07. We will continue our fight to honor his memory and all those that have gone before us. |
|
My Background and Lifestyle |
|
| MaritalStatus: | Married |
| SexualOrientation: | Straight |
| Hometown: | Northlake, IL |
| Religion: | Christian - other |
| Smoker: | No |
| Drinker: | No |
| Children: | Proud parent |
| Education: | College graduate |
| Occupation: | Employed |
My Pictures |
|
My Blog |
|
Thought this was interesting from parkinsonprofile.com |
|
| ..TR style="HEIGHT: 10.5pt; mso-yfti-irow: 0; mso-yfti-firstrow: yes">
Codes: M=mental, P=physical, S=social
E=emotional, F=financial, H=higher power/spiritual
A C T I O N
E X A M P L E S
M... Posted by Focus on a Cure for Parkinsons on Fri, 23 May 2008 10:50:00 PST |
|
Ponderisms from Ken |
|
| Something to ponder on, more to come......
What defines you?
=========
disable
Verb
[disabled] to make ineffective, unfit, or incapable
enable
Verb
[enabled]
1. to provide (someone) ... Posted by Focus on a Cure for Parkinsons on Fri, 23 May 2008 08:13:00 PST |
|
Video from Fox News Chicago on Parkinson’s Break Through |
|
| Break through or irresponsible journalism? You make the call
http://www.myfoxchicago.com/myfox/pages/Home/Detail;jsession
id=E846C4242628210502ABC08F6FD2A6EF?contentId=6597822&versio
n=1&l... Posted by Focus on a Cure for Parkinsons on Fri, 23 May 2008 07:53:00 PST |
|
Major ’Missed’ Biochemical Pathway |
|
| Major 'Missed' Biochemical Pathway Emerges As Important In Virtually All Cells
ScienceDaily (May 23, 2008) A new study by Duke University researchers provides more evidence that the nitric oxide (N... Posted by Focus on a Cure for Parkinsons on Fri, 23 May 2008 07:44:00 PST |
|
Michael J. Fox Gets Degree |
|
| Michael J. Fox Gets Degree Michael J. Fox, who was diagnosed with Parkinson's disease in 1991, has received an honorary degree from the University of British Columbia. And, as soon as he got the honor... Posted by Focus on a Cure for Parkinsons on Fri, 23 May 2008 07:39:00 PST |
|
Growth Factor Promotes New Neuron Growth in Mouse Model of Parkinson’s Disease |
|
| May 13, 2008
Newswise
Mice induced to develop Parkinson's disease show an increase in the growth of new neurons after they are treated with a well known growth factor. The research, to be pub... Posted by Focus on a Cure for Parkinsons on Wed, 14 May 2008 06:56:00 PST |
|
Just a reminder |
|
| The Focus on a Cure Foundation for Parkinson's 2008 Picnic in the PARKinson's event is just a week away RAIN OR SHINE! The event will have a large tent to accommodate our crowd in case of inclement we... Posted by Focus on a Cure for Parkinsons on Sun, 11 May 2008 07:28:00 PST |
|
Eye cell implants improve Parkinson’s symptoms |
|
| By implanting specialized cells found in the human eye into areas of the brain damaged by Parkinson's disease, researchers were able to reduce symptoms and improve quality of life in people with mode... Posted by Focus on a Cure for Parkinsons on Sun, 11 May 2008 05:36:00 PST |
|
Democratic Leaders Could Cure What Ails Us |
|
| May 8, 2008
Democratic Leaders Could Cure What Ails Us
By Harold Ford Jr. and Al From Commercial Appeal OnlineBy the time our next president takes the office, 50 million Americans will be livi... Posted by Focus on a Cure for Parkinsons on Sat, 10 May 2008 03:11:00 PST |
|
Champion Cyclist Regains Control of His Life in Battle with Parkinson’s |
|
| April 26, 2008
Cycling in Marin: Champion Cyclist Regains Control of His Life in Battle with Parkinson's
By Bob Cullinan, Marin Independent JournalIF you're looking for minor miracles, look no furt... Posted by Focus on a Cure for Parkinsons on Tue, 29 Apr 2008 07:50:00 PST |
|
My Friends |
|
|
Cure PD, Ken, TheRegulars, TEAMFOX, ♥ IDELIZA ♥ Help make a difference!, drew walker ::: US*99.5, Artoro, Eileen - Trail Called Hope III, Wild Cherokee Rose, Valkir Productions, Gaby, Darien, Freddy Powers, Michael J. Fox, k, Maire, BIRTHDAY PRINCESS!!, Piano music by Elijah Bossenbroek, Lady Guinevere, Bill, Denise, kevin, PictureACure, *PARKINSONS DISEASE*, Neal, Maria, Sandra, Joshua Dean Real Estate, * ~ A i r a b e l l a ~ *, Tammy & Jim, PARKINSONS AWARENESS, Steph =], Erin, otherwise known as Mommy,, Linda, CutesyPieKaz-Parkinson's- Fighting For A Cure, paul, f(red)erick and stephanie, Brenda Ann, NightDancers Music, I'm PROUD of YOU!, Theresa, Demeter, Pam, Chris, Infinity, Scott G. LaLonde Pt 2, Angie, Eofor, Victoria ... the "Mermaid with Heart", Ed Kelly, Cyrus: Vigorously Shaken Lawyer,Not Stirred Lawyer, PRAISE-APELLA - New Single Available, CURE MULTIPLE SYSTEM ATROPHY!!, ELUSIVEVIP©, ♥ Ronnie & Candace's Mom ♥, Cafe Cure, Brian, Steven Davis Jr. - Singing for the Children, Kathleen, Angel for the Lord, Frank Wright, judy, pat
Focus on a Cure for Parkinsons has 768 friends (63 shown). Click here to add Focus on a Cure for Parkinsons as a friend. |
|
Tags |
|
|
Focus on a Cure for Parkinsons's profile has been tagged with the following keywords. Click a tag to search for profiles with the same tags. cause of parkinsons disease, chronic neurological disorder, lou gehrigs disease, oswego illinois, highest wave, social security payments, undiagnosed cases, onset parkinson, bachelors degree, google, wife ann, ann marie, hiatus, nine years, one million, community involvement, carrot, social security, best friend, networking |
|